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Interviews with survivors, victims' families, policy makers, and health care workers. What went wrong? How can we make health care safer? Host Scott Simpson, uses his counselling skills to evoke the secrets, stories and solutions. https://www.patreon.com/rss/MedicalErrorInterviews?auth=2eY8hVY9bd5o78a8cmpNSURYZ2VrqXrq
Episodes
Monday Mar 22, 2021
Monday Mar 22, 2021
Multiple award winning author Marcus Sedgwick is best known for his popular fiction books, but his experiences with deeply entrenched medical gaslighting inspired his new book titled “All In Your Head - What happens when your doctor doesn’t believe you.”
Marcus describes how he got sick with flu like symptoms...but they never went away. Marcus was thrown into a world he did not even know existed, a world where very sick people are disbelieved and often belittled by physicians. A world Marcus is also seeing unfold for the millions of Long COVID patients around the world, where their physical symptoms are often dismissed as psychological. With Long COVID we are witnessing millions of people being medically traumatized by global gaslighting.
Marcus and I discuss the immense pressure physicians are under, from the government and insurance companies, and why the medical system has been set up so that it is in the physician’s best interest to say ‘it’s in your head’ rather than in your body. #FollowTheMoney
Connect with Marcus Sedgwick
‘All In Your Head’ preview:
https://marcussedgwick.com/all-in-your-head/
Twitter: @marcussedgwick
Instagram: @marcussedgwick
Be a podcast patron
Support Medical Error Interviews on Patreon by becoming a Patron for $2 / month for audio versions.
Premium Patrons get access to video versions of podcasts for $5 / month.
Be my Guest
I am always looking for guests to share their medical error experiences so we help bring awareness and make patients safer.
If you are a survivor, a victim’s surviving family member, a health care worker, advocate, researcher or policy maker and you would like to share your experiences, please send me an email with a brief description: RemediesPodcast@gmail.com
Need a Counsellor?
Like me, many of my clients at Remedies Counseling have experienced the often devastating effects of medical error.
If you need a counsellor for your experience with medical error, or living with a chronic illness(es), I offer online video counseling appointments.
**For my health and life balance, I limit my number of counseling clients.**
Email me to learn more or book an appointment: RemediesOnlineCounseling@gmail.com
Scott Simpson:
Counsellor + Patient Advocate + (former) Triathlete
I am a counsellor, patient advocate, and - before I became sick and disabled - a passionate triathlete. Work hard. Train hard. Rest hard.
I have been living with HIV since 1998. I was the first person living with HIV to compete at the triathlon world championships.
Thanks to research and access to medications, HIV is not a problem in my life.
I have been living with ME (myalgic encephalomyelitis) since 2012, and thanks in part to medical error, it is a big problem in my life.
Counseling / Research
I first became aware of the ubiquitousness of medical error during a decade of community based research working with the HIV Prevention Lab at Ryerson University, where I co-authored two research papers on a counseling intervention for people living with HIV, here and here.
Patient participants would often report varying degrees of medical neglect, error and harms as part of their counseling sessions.
Patient Advocacy
I am co-founder of the ME patient advocacy non-profit Millions Missing Canada, and on the Executive Committee of the Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis Research Network.
I am also a patient advisor for Health Quality Ontario’s Patient and Family Advisory Council, and member of Patients for Patient Safety Canada.
Medical Error Interviews podcast and vidcast emerged to give voice to victims, witnesses and participants in this hidden epidemic so we can create change toward a safer health care system.
My golden retriever Gladys is a constant source of love and joy. I hope to be well enough again one day to race triathlons again. Or even shovel the snow off the sidewalk.
Monday Jan 18, 2021
Monday Jan 18, 2021
Medicine is so messed up. It has been fatally bitten by its own dogma.
When singer-songwriter Dana Parish suddenly got very sick, she quickly had a correct diagnosis of Lyme disease and was given the standard antibiotic treatment. But Dana never fully recovered and eventually ended up in heart failure.
Dana saw many top doctors in New York and they all missed the ongoing underlying infection that would lead to Dana’s heart failure. None of these physicians could wrap their heads around the idea that Dana had been under treated for Lyme disease and it was causing her impending death.
Like other medically marginalized and discriminated diseases, chronic Lyme infection has been maligned and neglected by the very system that purports to provide medical care. This reflects the heart of the problem with our health care: entrenched discriminatory dogma in a closed system.
Eventually Dana found Dr Steven Phillips, who was already an internationally renowned physician specializing in complex, chronic diseases when he became a patient himself. After nearly dying from his own mystery illness, he experienced firsthand the medical community’s ignorance about the pathogens that underlie a deep spectrum of serious conditions—from fibromyalgia, multiple sclerosis and myalgic encephalomyelitis (MEcfs) to depression, anxiety, OCD and neurodegenerative disorders.
In their book Chronic: The Hidden Cause of the Autoimmune Pandemic, Dana and Dr Phillips explore the science behind common infections that are difficult to diagnose and treat and debunk widely held false beliefs by doctors that keep patients chronically sick.
With the Covid pandemic still going parabolic, and the number of Long Covid patients with chronic autoimmune symptoms also skyrocketing, their book could not be more timely.
Connect with Dana Parish:
Thechronicbook.com
Facebook.com/thechronicbook
Twitter @Lymebook
IG: Instagram.com/thechronicbook
Be a podcast patron
Support Medical Error Interviews on Patreon by becoming a Patron for $2 / month for audio versions.
Premium Patrons get access to video versions of podcasts for $5 / month.
Be my Guest
I am always looking for guests to share their medical error experiences so we help bring awareness and make patients safer.
If you are a survivor, a victim’s surviving family member, a health care worker, advocate, researcher or policy maker and you would like to share your experiences, please send me an email with a brief description: RemediesPodcast@gmail.com
Need a Counsellor?
Like me, many of my clients at Remedies Counseling have experienced the often devastating effects of medical error.
If you need a counsellor for your experience with medical error, or living with a chronic illness(es), I offer online video counseling appointments.
**For my health and life balance, I limit my number of counseling clients.**
Email me to learn more or book an appointment: RemediesOnlineCounseling@gmail.com
Scott Simpson:
Counsellor + Patient Advocate + (former) Triathlete
I am a counsellor, patient advocate, and - before I became sick and disabled - a passionate triathlete. Work hard. Train hard. Rest hard.
I have been living with HIV since 1998. I was the first person living with HIV to compete at the triathlon world championships.
Thanks to research and access to medications, HIV is not a problem in my life.
I have been living with ME (myalgic encephalomyelitis) since 2012, and thanks in part to medical error, it is a big problem in my life.
Counseling / Research
I first became aware of the ubiquitousness of medical error during a decade of community based research working with the HIV Prevention Lab at Ryerson University, where I co-authored two research papers on a counseling intervention for people living with HIV, here and here.
Patient participants would often report varying degrees of medical neglect, error and harms as part of their counseling sessions.
Patient Advocacy
I am co-founder of the ME patient advocacy non-profit Millions Missing Canada, and on the Executive Committee of the Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis Research Network.
I am also a patient advisor for Health Quality Ontario’s Patient and Family Advisory Council, and member of Patients for Patient Safety Canada.
Medical Error Interviews podcast and vidcast emerged to give voice to victims, witnesses and participants in this hidden epidemic so we can create change toward a safer health care system.
My golden retriever Gladys is a constant source of love and joy. I hope to be well enough again one day to race triathlons again. Or even shovel the snow off the sidewalk.
Monday Oct 19, 2020
Monday Oct 19, 2020
When Tracy Fossum had all the symptoms of a heart attack, the emergency room doctors thought Tracy was drug seeking and sent her away. Then her pain specialist physician implored her to go to a different hospital’s emergency room because they were heart attack specialists and would have to run appropriate tests.
But they thought Tracy was drug seeking too and made her wait 6 hours before being seen by a doctor --- and even then and in spite of being in immense pain for hours, the doctors and nurses were shaming and denigrating Tracy -- that is, until her heart stopped beating.
At that point, the doctors and nurses suddenly became empathetic and supportive of Tracy -- not because they cared about her, but because they realized she was having a heart attack and her husband had witnessed the abuse and neglect and was about to witness her death by medical bias.
This is just one of many harmful medical experiences Tracy has endured while being sick since childhood -- and they have formed her advocacy work around chronic pain -- and as more Long Covid patients report chronic pain, the number of patients needing Tracy and her team’s support is about to explode.
Connect with Tracy Fossum:
Email: Helpalbertaspain@gmail.com
Website: Www.helpalbertaspain.com
Facebook: Www.facebook.com/groups/helpab
Twitter: @HELP_AB
Monday Jul 13, 2020
Chandra Pasma: Long Haul COVID - Will this end for my family?
Monday Jul 13, 2020
Monday Jul 13, 2020
When I saw that Chandra Pasma was interviewed by media outlets, and that she lead the push for health officials to acknowledge and act upon patients still sick with COVID, I knew I needed to reach out to her and find out her experience with COVID and the health care system.
While the medical system has long known, but rarely acknowledged, that some people don’t recover from viral infections, and instead continue to experience a wide range of neurological symptoms, the COVID pandemic - and patient advocates like Chandra - are forcing health care systems to address the research, treatment and care of long haul COVID patients, and by extension, the millions of others who previously got sick with ‘the flu’, but remained sick -- sometimes so ill, they are house and bed bound, requiring total personal support.
You may be asking yourself: if medicine has known for a long time some people don’t recover from viral infections, why haven’t they been researching it?
Mostly it is because there is a wide spread and embedded medical error in the medical system -- it is so embedded, most physicians are blind to it. Just like fish don’t see water.
This institutional error is the physician’s ingrained habit of telling patients with physical symptoms with no obvious cause, that they are ‘all in your head’. This is known informally in patient circles as gaslighting. It is more formally called medical harm. And it is a pandemic unto itself.
But with millions of people infected with COVID, and early reports that at least 1 in 10 are not recovering, it will be near impossible for physicians to dismiss long haul COVID patients’ symptoms as ‘all in your head’.
The cruel irony is that for at least 3 decades, biological research on people with post viral illnesses, like MEcfs and SARS, had been mostly non-existent. And we can thank psychiatry, the least reputable division of medicine, for impeding biological research funding, and instead, embedding medical error in the form of gaslighting, in health care systems around the world.
So this may be one of the ‘good’ things that come out of the COVID pandemic: stopping the medical harm from physicians and psychiatrists of patients who don’t recover from viral infections.
Connect with Chandra Pasma on twitter: @ChandraPasma
Long Covid Facebook:
COVID Long Haulers Support Group Canada
https://www.facebook.com/groups/920314451799658
COVID Long Haulers Canada:
https://www.facebook.com/groups/950023472135178
Body Politic - COVID support group: https://www.wearebodypolitic.com/covid19
Be a podcast patron
Support Medical Error Interviews on Patreon by becoming a Patron for $2 / month for audio versions.
Premium Patrons get access to video versions of podcasts for $5 / month.
Be my Guest
I am always looking for guests to share their medical error experiences so we help bring awareness and make patients safer.
If you are a survivor, a victim’s surviving family member, a health care worker, advocate, researcher or policy maker and you would like to share your experiences, please send me an email with a brief description: RemediesPodcast@gmail.com
Need a Counsellor?
Like me, many of my clients at Remedies Counseling have experienced the often devastating effects of medical error.
If you need a counsellor for your experience with medical error, or living with a chronic illness(es), I offer online video counseling appointments.
**For my health and life balance, I limit my number of counseling clients.**
Email me to learn more or book an appointment: RemediesOnlineCounseling@gmail.com
Scott Simpson:
Counsellor + Patient Advocate + (former) Triathlete
I am a counsellor, patient advocate, and - before I became sick and disabled - a passionate triathlete. Work hard. Train hard. Rest hard.
I have been living with HIV since 1998. I was the first person living with HIV to compete at the triathlon world championships.
Thanks to research and access to medications, HIV is not a problem in my life.
I have been living with ME (myalgic encephalomyelitis) since 2012, and thanks in part to medical error, it is a big problem in my life.
Counseling / Research
I first became aware of the ubiquitousness of medical error during a decade of community based research working with the HIV Prevention Lab at Ryerson University, where I co-authored two research papers on a counseling intervention for people living with HIV, here and here.
Patient participants would often report varying degrees of medical neglect, error and harms as part of their counseling sessions.
Patient Advocacy
I am co-founder of the ME patient advocacy non-profit Millions Missing Canada, and on the Executive Committee of the Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis Research Network.
I am also a patient advisor for Health Quality Ontario’s Patient and Family Advisory Council, and member of Patients for Patient Safety Canada.
Medical Error Interviews podcast and vidcast emerged to give voice to victims, witnesses and participants in this hidden epidemic so we can create change toward a safer health care system.
My golden retriever Gladys is a constant source of love and joy. I hope to be well enough again one day to race triathlons again. Or even shovel the snow off the sidewalk.