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Interviews with survivors, victims' families, policy makers, and health care workers. What went wrong? How can we make health care safer? Host Scott Simpson, uses his counselling skills to evoke the secrets, stories and solutions. https://www.patreon.com/rss/MedicalErrorInterviews?auth=2eY8hVY9bd5o78a8cmpNSURYZ2VrqXrq
Episodes
Monday Apr 05, 2021
Monday Apr 05, 2021
Like the vast majority of people, you have probably taken an antibiotic at some point in your life. And it probably helped you. However, a class of antibiotics known as fluoroquinolones can cause permanent and severe damage -- this is known as fluoroquinolone toxicity, or, in the US, fluoroquinolone induced disability - FQID. This is a global health care problem that few know about -- or are warned about by their doctor. Why is that?
In this episode, I chat with someone who has insight not only into the dynamics that keep this medical harm mostly hidden from the public, but has also been profoundly impacted by fluoroquinolones.
Marc from Germany is just one of 10s of 1000s of people around the planet who have been injured by these antibiotics. Marc shares how he finally connected the dots between his declining health and repeated use of fluoroquinolones, and what he does to help alleviate the toxicity symptoms so that he has an improved quality of life.
The statistics of harm from fluoroquinolone toxicity are vastly under reported because the toxicity symptoms may not noticeably manifest until days, weeks or months after the antibiotic use. This makes it difficult for those affected to identify the cause of their symptoms, and a challenge for physicians to tease out….or even acknowledge.
Symptoms include tendon rupture, aortic rupture, hypoglycemia, nerve damage, mental health issues and -- surprisingly to me -- a dysfunctional response to exercise known as post exertional malaise, the hallmark symptom of the neurological disease ME, or myalgic encephalomyelitis. As you will hear, Marc postulates that some people diagnosed with ME may have fluoroquinolone toxicity. Is he connecting more dots, that the medical system is missing?
Connect with Marc:
Twitter: @FQID2
Marc’s Doctor is Dr. Stefan Pieper
Dr Pieper released a "Springer essential" at scientific publisher Springer in German with basic facts about diagnosis and possible treatment regarding FQID (Fluoroquinolone Induced Disability) https://springer.com
Be a podcast patron
Support Medical Error Interviews on Patreon by becoming a Patron for $2 / month for audio versions.
Premium Patrons get access to video versions of podcasts for $5 / month.
Be my Guest
I am always looking for guests to share their medical error experiences so we help bring awareness and make patients safer.
If you are a survivor, a victim’s surviving family member, a health care worker, advocate, researcher or policy maker and you would like to share your experiences, please send me an email with a brief description: RemediesPodcast@gmail.com
Need a Counsellor?
Like me, many of my clients at Remedies Counseling have experienced the often devastating effects of medical error.
If you need a counsellor for your experience with medical error, or living with a chronic illness(es), I offer online video counseling appointments.
**For my health and life balance, I limit my number of counseling clients.**
Email me to learn more or book an appointment: RemediesOnlineCounseling@gmail.com
Scott Simpson:
Counsellor + Patient Advocate + (former) Triathlete
I am a counsellor, patient advocate, and - before I became sick and disabled - a passionate triathlete. Work hard. Train hard. Rest hard.
I have been living with HIV since 1998. I was the first person living with HIV to compete at the triathlon world championships.
Thanks to research and access to medications, HIV is not a problem in my life.
I have been living with ME (myalgic encephalomyelitis) since 2012, and thanks in part to medical error, it is a big problem in my life.
Counseling / Research
I first became aware of the ubiquitousness of medical error during a decade of community based research working with the HIV Prevention Lab at Ryerson University, where I co-authored two research papers on a counseling intervention for people living with HIV, here and here.
Patient participants would often report varying degrees of medical neglect, error and harms as part of their counseling sessions.
Patient Advocacy
I am co-founder of the ME patient advocacy non-profit Millions Missing Canada, and on the Executive Committee of the Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis Research Network.
I am also a patient advisor for Health Quality Ontario’s Patient and Family Advisory Council, and member of Patients for Patient Safety Canada.
Medical Error Interviews podcast and vidcast emerged to give voice to victims, witnesses and participants in this hidden epidemic so we can create change toward a safer health care system.
My golden retriever Gladys is a constant source of love and joy. I hope to be well enough again one day to race triathlons again. Or even shovel the snow off the sidewalk.
Monday Mar 22, 2021
Monday Mar 22, 2021
Multiple award winning author Marcus Sedgwick is best known for his popular fiction books, but his experiences with deeply entrenched medical gaslighting inspired his new book titled “All In Your Head - What happens when your doctor doesn’t believe you.”
Marcus describes how he got sick with flu like symptoms...but they never went away. Marcus was thrown into a world he did not even know existed, a world where very sick people are disbelieved and often belittled by physicians. A world Marcus is also seeing unfold for the millions of Long COVID patients around the world, where their physical symptoms are often dismissed as psychological. With Long COVID we are witnessing millions of people being medically traumatized by global gaslighting.
Marcus and I discuss the immense pressure physicians are under, from the government and insurance companies, and why the medical system has been set up so that it is in the physician’s best interest to say ‘it’s in your head’ rather than in your body. #FollowTheMoney
Connect with Marcus Sedgwick
‘All In Your Head’ preview:
https://marcussedgwick.com/all-in-your-head/
Twitter: @marcussedgwick
Instagram: @marcussedgwick
Be a podcast patron
Support Medical Error Interviews on Patreon by becoming a Patron for $2 / month for audio versions.
Premium Patrons get access to video versions of podcasts for $5 / month.
Be my Guest
I am always looking for guests to share their medical error experiences so we help bring awareness and make patients safer.
If you are a survivor, a victim’s surviving family member, a health care worker, advocate, researcher or policy maker and you would like to share your experiences, please send me an email with a brief description: RemediesPodcast@gmail.com
Need a Counsellor?
Like me, many of my clients at Remedies Counseling have experienced the often devastating effects of medical error.
If you need a counsellor for your experience with medical error, or living with a chronic illness(es), I offer online video counseling appointments.
**For my health and life balance, I limit my number of counseling clients.**
Email me to learn more or book an appointment: RemediesOnlineCounseling@gmail.com
Scott Simpson:
Counsellor + Patient Advocate + (former) Triathlete
I am a counsellor, patient advocate, and - before I became sick and disabled - a passionate triathlete. Work hard. Train hard. Rest hard.
I have been living with HIV since 1998. I was the first person living with HIV to compete at the triathlon world championships.
Thanks to research and access to medications, HIV is not a problem in my life.
I have been living with ME (myalgic encephalomyelitis) since 2012, and thanks in part to medical error, it is a big problem in my life.
Counseling / Research
I first became aware of the ubiquitousness of medical error during a decade of community based research working with the HIV Prevention Lab at Ryerson University, where I co-authored two research papers on a counseling intervention for people living with HIV, here and here.
Patient participants would often report varying degrees of medical neglect, error and harms as part of their counseling sessions.
Patient Advocacy
I am co-founder of the ME patient advocacy non-profit Millions Missing Canada, and on the Executive Committee of the Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis Research Network.
I am also a patient advisor for Health Quality Ontario’s Patient and Family Advisory Council, and member of Patients for Patient Safety Canada.
Medical Error Interviews podcast and vidcast emerged to give voice to victims, witnesses and participants in this hidden epidemic so we can create change toward a safer health care system.
My golden retriever Gladys is a constant source of love and joy. I hope to be well enough again one day to race triathlons again. Or even shovel the snow off the sidewalk.
Monday Jan 18, 2021
Monday Jan 18, 2021
Medicine is so messed up. It has been fatally bitten by its own dogma.
When singer-songwriter Dana Parish suddenly got very sick, she quickly had a correct diagnosis of Lyme disease and was given the standard antibiotic treatment. But Dana never fully recovered and eventually ended up in heart failure.
Dana saw many top doctors in New York and they all missed the ongoing underlying infection that would lead to Dana’s heart failure. None of these physicians could wrap their heads around the idea that Dana had been under treated for Lyme disease and it was causing her impending death.
Like other medically marginalized and discriminated diseases, chronic Lyme infection has been maligned and neglected by the very system that purports to provide medical care. This reflects the heart of the problem with our health care: entrenched discriminatory dogma in a closed system.
Eventually Dana found Dr Steven Phillips, who was already an internationally renowned physician specializing in complex, chronic diseases when he became a patient himself. After nearly dying from his own mystery illness, he experienced firsthand the medical community’s ignorance about the pathogens that underlie a deep spectrum of serious conditions—from fibromyalgia, multiple sclerosis and myalgic encephalomyelitis (MEcfs) to depression, anxiety, OCD and neurodegenerative disorders.
In their book Chronic: The Hidden Cause of the Autoimmune Pandemic, Dana and Dr Phillips explore the science behind common infections that are difficult to diagnose and treat and debunk widely held false beliefs by doctors that keep patients chronically sick.
With the Covid pandemic still going parabolic, and the number of Long Covid patients with chronic autoimmune symptoms also skyrocketing, their book could not be more timely.
Connect with Dana Parish:
Thechronicbook.com
Facebook.com/thechronicbook
Twitter @Lymebook
IG: Instagram.com/thechronicbook
Be a podcast patron
Support Medical Error Interviews on Patreon by becoming a Patron for $2 / month for audio versions.
Premium Patrons get access to video versions of podcasts for $5 / month.
Be my Guest
I am always looking for guests to share their medical error experiences so we help bring awareness and make patients safer.
If you are a survivor, a victim’s surviving family member, a health care worker, advocate, researcher or policy maker and you would like to share your experiences, please send me an email with a brief description: RemediesPodcast@gmail.com
Need a Counsellor?
Like me, many of my clients at Remedies Counseling have experienced the often devastating effects of medical error.
If you need a counsellor for your experience with medical error, or living with a chronic illness(es), I offer online video counseling appointments.
**For my health and life balance, I limit my number of counseling clients.**
Email me to learn more or book an appointment: RemediesOnlineCounseling@gmail.com
Scott Simpson:
Counsellor + Patient Advocate + (former) Triathlete
I am a counsellor, patient advocate, and - before I became sick and disabled - a passionate triathlete. Work hard. Train hard. Rest hard.
I have been living with HIV since 1998. I was the first person living with HIV to compete at the triathlon world championships.
Thanks to research and access to medications, HIV is not a problem in my life.
I have been living with ME (myalgic encephalomyelitis) since 2012, and thanks in part to medical error, it is a big problem in my life.
Counseling / Research
I first became aware of the ubiquitousness of medical error during a decade of community based research working with the HIV Prevention Lab at Ryerson University, where I co-authored two research papers on a counseling intervention for people living with HIV, here and here.
Patient participants would often report varying degrees of medical neglect, error and harms as part of their counseling sessions.
Patient Advocacy
I am co-founder of the ME patient advocacy non-profit Millions Missing Canada, and on the Executive Committee of the Interdisciplinary Canadian Collaborative Myalgic Encephalomyelitis Research Network.
I am also a patient advisor for Health Quality Ontario’s Patient and Family Advisory Council, and member of Patients for Patient Safety Canada.
Medical Error Interviews podcast and vidcast emerged to give voice to victims, witnesses and participants in this hidden epidemic so we can create change toward a safer health care system.
My golden retriever Gladys is a constant source of love and joy. I hope to be well enough again one day to race triathlons again. Or even shovel the snow off the sidewalk.
Friday Aug 16, 2019
Paul Smith: How a somatization 'diagnosis' almost killed him
Friday Aug 16, 2019
Friday Aug 16, 2019
Paul Smith, an artist and self-described workaholic, for years experienced weird and increasingly debilitating symptoms, that would come for periods of time and mostly or completely dissipate.
Flu like symptoms, abdominal pain, muscle weakness, confusion - problems with his vision speech and balance - breathing problems where felt like he was suffocating
These symptoms were so intense that at times Paul felt like he was going to die, and so he wrote letters to his children.
Doctors dismissed his symptoms. Doctors labeled Paul with a somatization diagnosis, basically saying he wasn’t physically sick, just mentally.
For years, every doctor Paul went to about his debilitating physical symptoms would see the somatization diagnosis on the front page of his medical record, and dismiss Paul’s symptoms as being in his head.
Then Paul developed a massive abscess next to his bowel and developed life threatening sepsis. The doctors couldn’t dismiss those facts. Paul received antibiotics for the sepsis and his other symptoms disappeared.
Yet when that treatment ended and Paul fell sick again, the somatization diagnosis preceded him to every doctor and once they saw that label, any of Paul’s physical symptoms were dismissed.
But Paul did not give up. Eventually he found a couple of doctors - his ‘heroes’ - and he was finally and correctly - after 20+ years since the symptoms started - diagnosed with D-Lactic Acidosis, which is an over growth of bacteria in the gut, flooding Paul’s body with its neurotoxin.
Paul thinks many other people with other diagnosis like ME/CFS or somatization, may also have bacterial over growth in their guts.
Paul had to fight for years to get the harmful somatization label taken out his medical file. That label prevented Paul from receiving appropriate medical testing and treatment for years and Paul contends that the somatization diagnosis is in effect, a human rights violation.
SHOW NOTES
Fit, healthy and productive until...
Brother's betrayal
Expecting to die
Thursday Jul 18, 2019
Brian Hughes: Psychology in Crisis - an interview with the psychologist and author
Thursday Jul 18, 2019
Thursday Jul 18, 2019
We talk about an infamous research trial out of the UK and how its very poor methodology - coupled with what has been characterized as fraudulent behaviour by the researchers - has lead to millions of patients around the globe with the biological disease Myalgic Encephalomyelitis - or ME for short - to be subjected to medical harm, abuse and trauma.
These ME patients are often prescribed ‘treatment’ that is actually contraindicated and makes them more ill, sometimes permanently disabling them.
As one ME researcher noted - I’m paraphrasing her - “They came to the doctor with ME. They left with PTSD.”
This bad science by psychology researchers who have built their reputations, their careers and their bank accounts on their fraudulent research and harmful treatment, have embedded medical error on a global scale by negatively influencing health care systems everywhere and misinforming physicians about the biological nature of ME.
Brian’s book shows how bad psychological science leads to an institutionalized and embedded medical error that permeates our health care systems world wide.
Wednesday May 29, 2019
Wednesday May 29, 2019
Jeff Wood has one of the greatest Lazarus-like life stories you will ever hear. Jeff’s experience is made even more remarkable by a health care system that denied he was even ill. Jeff was so sick and disabled he spent years bed bound requiring care from his family, while physicians told him he was not really sick and that he had psychological problems.
But Jeff was very, very sick, and through his own tenacity and own research from his hospital bed, was able to determine the cause of his inability to be vertical, set up a meeting with a world renowned neurosurgeon, get a diagnosis over his phone, and a referral from that neurosurgeon to transfer Jeff to his hospital for surgery.
But the current hospital, deeply ego invested in their psychological diagnosis, refused to transfer Jeff for the surgery, while they continued to verbally and psychologically abuse and torment him.
I am amazed by Jeff’s journey to hell and back, but especially by his rational and grounded account of medical errors that can be traced back to when he was a toddler, and his determination to help other patients not have to endure the medical error and abuses he survived.
4:45
Jeff talks about how his story will blow people's mind - his tethered cord, leg and foot pain as a child, Jen Brea
6:15
About the podcast
I’m Scott Simpson, a personal counsellor by day, a podcast host by night, and a sick and disabled patient advocate surviving medical error.
My hope is that by sharing stories of medical error, we can bring awareness to this 3rd leading cause of death, and implement solutions for patient safety.
But the podcast is not just about medical error experiences, I also interview people who are trying to make health care systems safer for all of us.
Turns out that a lot of people working on patient safety, have personal experiences with medical error.
The airline industry is quite transparent about their safety incidents. The exact opposite is true about the medical industry.
They work hard to ensure the public does not get easy access to data about medical errors.
Medical Error Interviews brings transparency to medical harm and death, giving voice to survivors and change makers.
You can support the podcast and help make health care safer by becoming a Patron or Premium Patron.